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CLL Diagnosis: I Chose To Live

18 Nov

In January 1999, I was diagnosed with Chronic Lymphocytic Leukemia (CLL).  The prognosis was a 50% chance of living five years.  I searched in vain to find one person who had survived CLL longer than ten years.  I chose to live by refusing chemotherapy and embracing a macrobiotic path toward recovery.

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9 Comments

Posted by on November 18, 2012 in CLL

 

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9 responses to “CLL Diagnosis: I Chose To Live

  1. Anonymous

    November 21, 2012 at 3:40 pm

    JoAnn, I am a compadre diagnosed in 2001. can you share the supplements that are part of your macrobiotic recovery program?

     
    • JoAnn Grasso

      November 21, 2012 at 4:27 pm

      Hi, Thanks for your question. I don’t take any supplements or medications. I’m planning to post more information about macrobiotics and my own experiences and situations soon.

       
      • Anonymous

        November 21, 2012 at 5:12 pm

        JoAnn,

        thank you for your prompt response. I am looking forward to your info about how you integrate macrobiotics into you CLL treatment

        Gregory

         
      • anonymous

        December 13, 2012 at 12:32 am

        Hi Joann-
        I was diagonsed with CLL about 11 years ago. i have been on a macrobiotic diet for the past 7 years and recently my white blood count is climbing upward. can you give me some idea on what you found to work for you on a macrobiotic diet to bring your white blood count down. Is your white blood count in the normal range now?
        thanks

         
      • anonymous

        January 22, 2013 at 8:12 am

        hi joanne- it is great to know that macrobiotics is working for you with the CLL. is your white blood count in the normal range now or still elevated but holding? anything specific in macrobiotics that you find helps bring down the white blood count. are you working with a specific counselor or doing it on your own. i have been macro for about 8 yrs. i have never been able to get my counts normal….but i have lots of energy and my dr’s are amazed that i have no other symptoms except the high white count. any suggestions?
        thank you

         
      • JoAnn Grasso

        January 22, 2013 at 12:03 pm

        Hi, I’m so glad to hear from you! Please accept my sincere apology for not replying to your previous comment. You have been on my mind as I’ve been considering the best way to answer your questions. This has been one of my top priorities today. I’m planning to post a reply sometime tonight or tomorrow. Thank you for your continued patience. Truly, JoAnn

         
  2. cricketmuse

    January 21, 2013 at 4:03 pm

    Encouraging! Continued good wishes! Shall I sign you up on Book Boosters? We’re a pretty fun crowd of bibliophiles.
    Happy Pages,
    CricketMuse

     
    • JoAnn Grasso

      January 21, 2013 at 4:43 pm

      Hi CricketMuse, Thank you for the good wishes and visiting my blog. Yes, please add me to your Book Boosters! According to your criteria, I qualify on all counts, including “nestled in a backpack”. 🙂

       
      • cricketmuse

        January 22, 2013 at 7:16 pm

        You’re on the roll call! Welcome aboard and happy web siting with all the other BBs on the list.

         

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