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40 Things I Learned During First Year After CLL Diagnosis

I wrote the following list titled “What I have learned since CLL diagnosis” in Wichita, Kansas on February 27, 2000: 

1) Life is short.

a) Eat dessert first.

b) Draw your lines. Take your stands. Be prepared to walk alone.

c) Dispose of clutter.

d) Get organized.

2. Hope is the most important factor in healing.

3. Mountains are inspirational.

4. I am not, nor do I want to be, a religious person.

5. Food can kill or heal.

6. The Interlibrary Loan Program is too slow to be useful.

7. Some problems are unsolvable.

8. Remain focused on your most important life goals. It is easy to be led astray.

9. Time, Money, and Energy are important resources to help you achieve your goals.

10. Balance is a key factor to living a healthy and happy life.

11. It is important for people to cook for and nourish themselves.

12. I sometimes say things which hurt or offend others.

13. In order to heal, you must first choose to and want to heal. Some people don’t.

14. Chemotherapy is poison.

15. Even organic foods may be genetically engineered.

16. The world will pass you by if you don’t get out there and live.

17. I don’t like writing “my story”.

18. You can lose thousands of dollars in the stock market overnight. The majority of a person’s savings should be kept in a low-risk, growing investment.

19. You can’t get your money out of a 401k. You can only borrow and re-pay a portion, with interest.

20. The tax advantages of IRAs are pointless if your investment declines in value from original contribution amount.

21. Buy cheap and hold long-term is best investment (stocks) strategy.

22. Relaxing and enjoying yourself are important to living a balanced life.

23. Eating the modern American diet combined with smoking regular (additive) cigarettes causes some cancers. Eating a macrobiotic diet and being in good health allows you the personal choice of smoking 100% tobacco (non-additive) cigarettes.

24. People with cancer always feel cold.

25. Computers and the Internet are useful tools.

26. The basic necessities of modern life are food, clothing, shelter, fuel, transportation, and communication.

27. Home interiors should have plenty of correct lighting and plants.

28. Human beings do not need to eat meat, no matter what they ‘think’.

29. I love to read, research, and write about subjects which are interesting to me ~ at my own pace (slow).

30. There are times when human interaction is superior to book reading.

31. If you don’t make travel plans, you will never get to the places you want to go.

32. It is worthwhile to pay for services which free you to focus upon more fruitful endeavors, or condense your learning curve, etc.

33. Reading personal stories of people who have recovered from cancer provides hope and knowledge that is extremely beneficial.

34. Chinese food is not healthful, but Japanese food is healthful.

35. Most foods can be eaten with chopsticks and the remainder with a spoon.

36. Doctors do not heal patients. Patients heal themselves.

37. Bad things happen to good people and vice versa.

38. Dreaming is not a good thing.

39. Trust and follow your own intuition.

40. Remission is not a cure, just a temporary subsiding of symptoms. The illness remains dormant, not gone.

 
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Posted by on August 23, 2014 in CLL

 

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Video: Roar by Katy Perry

 
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Posted by on August 21, 2014 in Music Videos

 

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Book Review: “In Memory’s Kitchen: A Legacy From The Women Of Terezin”

Photo Credit: “Small Fortress, Terezin, Czech Republic” © Emmanuel Dylan, Some Rights Reserved http://creativecommons.org/licenses/by/2.0/deed.en

In the book Eat My Words: Reading Women’s Lives Through the Cookbooks They Wrote, Janet Theophano wrote about In Memory’s Kitchen: “A group of Jewish women who were inmates in the Theresienstadt concentration camp in Czechoslovakia dreamed of home and family and a way of life that was being extinguished. The women wrote their memories of food into a cookbook that took over fifty years to reach publication in 1996.”

While starving and facing death, these women wrote their memories of food. Within an hour, I borrowed and began reading this book from the University of Iowa Library.

In Memory’s Kitchen exemplifies the power of imagination and memory on our ability to cope when suffering and confronting atrocities and the endurance of the human spirit.

Michael Berenbaum, Director of the United States Holocaust Research Institute, wrote in the Foreword: “It is a flight of the imagination back to an earlier time when food was available, when women had homes and kitchens and could provide a meal for their children.” He also noted: “15,000 children were sent to the camp, by the war’s end only 100 of them were alive.”

I don’t intend to cook any of the recipes, but they were interesting to read. Some contain ingredients that I found surprising like brains and goose fat. I would like to learn what type of rolls some recipes list as an ingredient.

A short bibliography, plus a biographical sketch of the cookbook’s author, Wilhelmina (Mina) Pachter, and some poems and letters she wrote, are included.

JoAnn Grasso’s Reviews > In Memory’s Kitchen: A Legacy from the Women of Terezin

 
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Posted by on January 17, 2013 in Books

 

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Health, Macrobiotics and the Power of Nature • Warren Kramer • Part 1

“Simply put, macrobiotics is an orderly approach to diet and lifestyle.”

 
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Posted by on January 14, 2013 in Macrobiotics

 

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Health, Macrobiotics and the Power of Nature • Warren Kramer • Part 2

In this video, Warren Kramer advises:

1) Sit down to eat.

2) Eat at regular times.

 
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Posted by on January 14, 2013 in Macrobiotics

 

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Macrobiotics with Edward Esko- “Keys to Health”

“Everything changes. The only constant in life is change.”

 
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Posted by on January 14, 2013 in Macrobiotics

 

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Macrobiotics with Edward Esko-“Defining Health”

“Health means how you, as an individual, are relating to the universe/nature.”

 
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Posted by on January 14, 2013 in Macrobiotics

 

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Macrobiotic Strict Healing Phase: 3 Books

There is a difference between the standard macrobiotic diet and the initial strict healing phase diet! I didn’t fully understand this at first and wasted time, money, and energy acquiring food items that I wasn’t healthy enough to eat.

The following two books contain sections about Leukemia:

THE CANCER PREVENTION DIET, REVISED AND UPDATED EDITION: The Macrobiotic Approach to Preventing and Relieving Cancer by Michio Kushi and Alex Jack   http://us.macmillan.com/thecancerpreventiondietrevisedandupdatededition/MichioKushi#buy-the-book

The Macrobiotic Path to Total Health: A Complete Guide to Naturally Preventing and Relieving More Than 200 Chronic Conditions and Disorders by Michio Kushi and Alex Jack http://www.randomhouse.com/book/96378/the-macrobiotic-path-to-total-health-by-michio-kushi-and-alex-jack

 

This book explains the macrobiotic diet strict healing phase:

The Cure is in the Kitchen: A Guide to Healthy Eating by Sherry A. Rogers, MD (Foreword by Michio Kushi)  http://prestigepublishing.com/cgi-bin/htmlos.cgi/00534.1.2955316266321962659

 

 
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Posted by on January 7, 2013 in Books, CLL, Macrobiotics

 

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Macrobiotics and Leukemia Recovery

Diet Saves Their Lives vol. 14 part I

 

Diet Saves Their Lives vol. 14 part II

 

When some of my friends and family see this, there’s a good chance they’ll roll their eyes thinking, “There she goes again… on and on and on… about the amazing Christina Pirello.  Haven’t I been subjected to enough of this? Now she even found videos!”.

Christina states in the first video that she was diagnosed with Acute Lymphocytic Leukemia (ALL). Although I was diagnosed with Chronic Lymphocytic Leukemia (CLL), she is the one person I found who had survived more than 10 years and recovered from any type of leukemia. What is the difference between acute and chronic leukemia?

“The different types of leukemia are categorized as either acute or chronic. In acute leukemia, the abnormal blood cells are blasts that remain very immature and cannot carry out their normal functions. With acute leukemia, the number of blasts increases rapidly, and the disease gets worse quickly. In chronic leukemia cases, some blast cells are present, but in general, these cells are more mature and can carry out some of their normal functions. Also, the number of blasts increases less rapidly than in acute leukemia. As a result, chronic leukemia gets worse gradually.”

Quote Source: http://www.cancercompass.com/leukemia-information/types-of-leukemia.htm

 

 
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Posted by on January 7, 2013 in CLL, Macrobiotics

 

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Macrobiotics and Leukemia

Here are two links to overviews of Macrobiotics that mention Leukemia. Neither are specifically about Chronic Lymphocytic Leukemia but they provide both the big picture and some details.

The Macrobiotic Diet by Ross Pelton & Lee Overholser:  http://curezone.org/faq/q.asp?a=92,622&q=56

I haven’t read their book, Alternatives In Cancer Therapy, but I like this excerpt. Leukemia is yin, therefore; it is necessary to become more yang.

The Theory and Practice of the Dietary Component of Macrobiotics and its Role in Cancer Therapy by Michio Kushi: http://www.michiokushi.org/michio/speech010301.htm

He briefly summarizes the dietary cause of Leukemia as an “Over-consumption of refined sugar products, such as sugar, cakes, chocolate, and fruits and fruit juices; combined with oily/greasy foods.”

    

 

 
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Posted by on January 6, 2013 in CLL, Macrobiotics

 

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